Trainwreck

Sorry everyone that I have been MIA for long. I feel like my life is just a trainwreck at the moment and I haven't felt like I could inject any humour in it and also that no one wants to read about how crappy someone else's life is unless it makes them smile, so I haven't been typing.

But I feel like I should give a small update on some things that have been going on.

First of all Simon and Jude had their appt with the urologist about a week ago. Simon was a-okay (whew) and as far as Jude is concerned, apparently urological thinking has come full circle in the last 5 years and unless/until he ever gets a UTI, which is very unlikely at this point, he will be treated by the medical community as a normal person regardless. So no more going in for every minor fever and antibiotics 'just in case.' We finally get to close the book on that thank goodness. And for similar reasons they no longer see any reason to subject Simon to a VCUG unless/until he gets a UTI, so the lucky little man gets to be the only kid in the family to avoid that horrible test so far.

Then this week Hazel got some bug that went straight to her lungs. Yesterday was very yucky and she is now on oral prednilisone and albuterol in a nebulizer every 6 hours until Friday when we go in for a follow up appt. The first time we did the nebulizer at home, it scared Willa so much she cried and Jude asked Hazel if she felt like she was going to die. ahhhh.

Since then they have come around and don't think it is so wierd to see her masked up at the dinner table. They call her the green elephant since her mask is green.

Willa seems to have caught the same thing, but so far her asthma hasn't really kicked in. She has had to use her inhaler a couple of times, but no retracting so far. Maybe the Singulair is keeping it all under control? We hope it keeps up and she is better by her birthday!

Also as an information note. Jon was knocked back by J&J yesterday and hasn't heard why yet. He has one maybe two interviews coming up in Cambridge, MA and RTP. We'll see what happens.